Saturday, December 29, 2007

Radiation

I was looking back at my posts, and realized I never described radiation therapy.  Since it's late, I'll make it short.

Five days a week, for a month and a half, I drove to Piedmont Hospital and parked in the ER parking lot (us radiation folks get to do that!).  Then I'd walk to the radiation center which is very close to the parking.  There, I would change in one of the 2 dressing rooms and put on a blue gown.  After sitting in the waiting room drinking water, one of the nurses calls my name and the fun begins.  I get to go through a giant metal door and into a rather normal looking room.  It has shelves and papers and mirrors. But, it also has cameras, plastic molds of people's bodies or heads, and, of course, a giant machine with a metal bed in front of it:

I lie down on the bed while 2 nurses shove me this way and that to get the green laser beams to line up with the 6 blue dots that have been tattooed on me. This almost always resulted in my being topless at some point and very happy that the nurses were girls. They then leave the room, shut to giant metal door, and start up the machine while keeping an eye on my through the cameras (can't have a window in this room). The noise is so weird. I've had several moles removed, and it reminded me of the sound the thing that is used to burn your flesh to stop the bleeding makes. So the first few times I thought I would smell burning flesh. And hey, I guess it's not that far off. Fortunately, it only takes about a minute and your done. Then I head home and continue with the day. And, of course, go back the next day to do it all again.

Thursday, December 27, 2007

Before and After

Some pictures I never posted of me bald (and showing off my new pink iPod):


And me now, with hair:

Oh, and my first follow up scan came back negative! *cheers*

Thursday, December 13, 2007

Definitely not alone

Gotta agree with everything this gal says:
Rant

Wednesday, December 5, 2007

Plans

Ok, I have a strange plan. I'm tired, depressed, dizzy half the time, sweating from the Lexapro, etc etc. All in all, actaully not that bad. But a huge part of my depression (in addition to the whole not wanting to get cancer again thing) is my damn weight gain. So I have a plan. I'm continuing with my trying to get my ass to campus and read more often, but since I always snack while playing video games, I'm doing something nasty to prevent this. I'm playing a stupidly slender, pretty character who looks like me... minus the 40 pounds and plus a lot of hair. There's no way I can nibble on crisps or drink chocolate milk while playing this annoyingly slim toon. If it makes me stop playing instead, oh well, it's still some good. But damn it, I'm going to loose this weight. *drains the coke down the sink and drinks her water*

Oh... and I'm playing on my brand new 24" lcd monitor. It's gorgeous!!!

Friday, November 30, 2007

Wednesday, November 28, 2007

So it's been awhile. I really haven't been doing much other than being too scared to leave the apartment except to get groceries. Today I managed to get myself onto campus and sit in my office for a few hours. I panicked. Actually started crying in the hallway in a corner so no one would see me. Fortunately, I was able to get a hold of my mom, so she helped calm me down a lot. I also ended up getting scolded for not taking my Lexapro. I just keep wishing I didn't need it. I feel like I should be able to get a grip of myself and move on. But instead I have nightmares of either one of my parents or Fritz dying. I wake up hoping that my cancer comes back instead.

I'm also itchy all over. I assume it's just cause I'm ridiculously anxious and that the cold weather is making my skin dry out. But of course I nervously wonder if it's my cancer coming back, since that was one of the symptoms. But I'm not as crazy itchy as I was then, when I just couldn't stop scratching. I swear my skin became a living nail file so I wouldn't have to cut my fingernails. Now I check my legs everyday to make sure there are no rashes, cause that would be the next phase.

On December 17th I get my first follow up PET scan, on December 19th I see Dr. Mininberg to find out the results, and right in between, on December 18th, is our 2 year wedding anniversary. Clearly I wasn't paying attention when I scheduled those appointments...

I'll have to go now, my stomach is doing it's annoying stuff again. Ever since the surgery it randomly starts churning and cramping. Need to lie down.

Saturday, November 3, 2007

My back is peeling... Eww...

Friday, October 26, 2007

lol

Ok, this video only makes sense to people who play World of Warcraft. If you don't play WoW, don't bother hitting play, it won't make any sense. =)

AAAAHHHHHH!!!!!!

OMG I'M DONE!!!!!!!!!!!!!!!!!!!!!!!!!!

Tuesday, October 23, 2007

Hair time!

OMG I have hair???


Mmmm.... Hair....


I like the hair.


Check out my right ear.

I'M SO TIRED!!!!!

Monday, October 15, 2007

Jerry Seinfeld is officially not funny anymore.
I'm so dizzy and lightheaded, this is driving me nuts. Also seems I'm getting a cold or something, fun stuff. I think I'm going to have to drop thermodynamics, I'm just too far behind and still not well enough to even get back in. Really sucks, cause I was very much enjoying that class. But I definitely don't want to keep the class and just scrape by. I want to take it and ace it. Hopefully I can keep my other class, see how things go.

Sunday, October 14, 2007

I got my ear pierced. Don't tell my parents. Wait, they probably read this blog more than anyone. Where's the delete button...





In other news... Ok, it's not other news. The girl that pierced my ear had shaved her head when her best friend lost all her hair to chemotherapy. Her friend had leukemia and is now doing very well. I love meeting people that understand this stuff. It always feels nice to say something about what you're going through and the other person actually gets it. You can imagine what it's like all you want, but you really have to be there first hand to know it. Family and close friends who see it all the time. I'm actually amazed at how strong Fritz is. I know it hasn't been easy for him, but since he's the best husband you can get (sorry Dad =P)*, what more can you expect?

* Clarification here. This was not meant as "sorry Dad, you were wrong" but as "sorry Dad, my hubby's a better hubby." =D

Saturday, October 13, 2007

Ok, I've been convinced to rephrase my bet. I'll bet $50 that when I get cancer again, I'll make it again.
I think I'm going to have a major meltdown soon. Nothing goes right. NOTHING! I may be going back on my antidepressants. This is just getting to be too much to handle. Cancer, chemotherapy, car accident, ER trip, radiation therapy, another ER trip, surgery, another car accident. What's next? Oooh, I know!! I'll get my cancer back! I'm almost willing to bet anyone $50 it comes back within the next 2 years. Hey, I need that $50 at this point, so it's on.

WTF!

Someone nailed the shit out of our car in the parking lot and ran off. This was the lovely sight that greated us when we went to the car this morning.


Wednesday, October 3, 2007

Tuesday, October 2, 2007

No more appendix

So I haven't posted in a while cause I've been busy having fun. Apparently that time I went to the ER 2 months ago I probably had appendicitis, and since nothing was done about it at the time, last week on Friday my appendix burst. I went to radiation as usual at noon, but in great pain. The doctor on call there that day checked me out and told me to head to the ER.

Well, it took them 9 hours to finally actually do anything with me other than either make me wait in pain at the entrance for hours, or wait in the halls in pain for hours. They kept saying they would give me pain medication, but it took a LONG time to happen. You'd think doctors walking past would pay attention to the bald cancer girl crying her eyeballs out and screaming. Not just walk past without even looking...

Anyway, they finally decided to give me a CAT scan. But since I'm allergic to iodine contrast, they couldn't give me that. They tried to get me to drink that chalky crap (which was the important part anyway) but I've never been able to keep it down in the past when I felt good. So obviously I just threw it up. So they decided to just give me a CAT scan but said it would only see anything if it was REALLY serious, so most likely there would be nothing. Well, 5 minutes after my CAT scan the head nurse came and told me I had appendicitis. It was so bad it lit up the on the scanner without any form of contrast. Surgeon came down, checked me out, and decided I needed surgery right then. They would do the surgery laprascopically, making 3 incisions and use a camera to help them take out the appendix. A very quick and easy surgery. However, when they went in, they soon saw that it was much much worse and would have to actually cut me open. Apparently my appendix had burst and was barely hanging on to my colon at that point. I was filled with pus and lots of infection. So yeah...

Well, I spent 4 nights at the hospital, just got home today. I'm still in a LOT of pain. I have 2 small wounds, one medium sized one, and one on my side that is quite large and the main source of pain. I guess I got out of my test on Monday... I was actually looking forward to studying for it cause studying for a test is soo soo soo much better than chemotherapy. I was excited, damn it! Have to figure out how I'm going to catch up, but it'll be 2 weeks I think till I can get back to class. See what happens.

Sunday, September 23, 2007

Kocham Cie, Babcia.

Sunday, September 16, 2007

Let's add to the list of chemotherapy side effects, shall we? Today I shall add... kidney stones!! It umm... really hurts... Well, now I know that the pain I've been having in my side was from kidney stones. Right now the damn thing is trying to come out. Good thing I've been through chemotherapy and surgery and so am somewhat numb to pain. Otherwise this would be making me scream.

Friday, September 14, 2007

Ok, feeling better now. Got me some more good ol rock music. Listening to Rammstein, Nine Inch Nails, Korn, etc. is making me feel a lot better. Instead of feeling ridiculously bummed out I feel like I could beat the crap out of something. Much better! Now let's see, what can I beat up... not much atm, but if I work out more! Hehe. I need more muscle, badly.
I need to take my Lexapro, I need a damn vacation, and I want to move to Miami someday cause I really really want to live in Miami.
It's great and all that all this treatment is saving my life, but it's left me rather pathetic. I'm nothing like what I used to be like it seems. Before all this crap happened, I was a new graduate student, very excited, and looking forward to everything. I worked out 3 days a week every week, and so I had a pretty good body. I played with our lovely doggie all the time, going to the dog park and what not. My life was actually productive. Now I'm left with very little. Instead of being a fresh grad student, I'm a second year that's just way behind everyone else. I really can't see finishing at this point. I have no clue how I'm supposed to catch up when even now I'm still not well.

My body has certainly gone down the tubes. 30 pounds and nasty stretch marks are just lovely things to see in the mirror every day. I mean, my chest is purple. There's no way around it. I really really cannot stand to see myself. As much as I hate having this pathetic 2mm long hair on my head, the rest is much worse. Even my face looks awful. It's still big and round from steroids (though part is certainly from the weight gain). My nails still split apart and look funky.

I'm tired all the time. I can't even get myself to keep up with cleaning the apartment. And as much as I love Fritz and know he's an awesome guy, I can't help but sometimes wonder why the hell he still hangs around me. I have nothing to offer. I'm just an empty shell, and the shell isn't even pretty anymore.

I secretly sometimes think the chemo and radiation are being wasted on me. I'm never going to get away from cancer, I'll have to have PET scans every year for the rest of my life. When I turn 30 I'll have to get MRIs twice a year because I'm likely to get breast cancer (lovely radiation). And apparently whatever caused my Hodgkin's means that I'm just prone to cancer in general. So I get to expect to go through this again. How many times I don't know. For the rest of my life I'll have to struggle with insurance, cause who wants to insure someone who's probably going to get cancer? And then there's the issue of relapse. As in, getting Hodgkin's again within the next few years. Apparently the treatment I'd have to get if that happens puts chemotherapy to shame. I really really REALLY don't want to find out for myself. I have a 15% chance of relapse (50% if I don't do the radiation).

I've never ever once thought "why me", but I sure as hell think it sucks, a whole lot. And right now, I just can't see a future for myself, no matter how hard I try. All I can see is cancer.

And I'm tried of being told to just snap out of it and get on with life. Like it's no big deal now that the worst is over. But then it's only considered the worst by people that haven't gone through it. For me the post chemo part is harder. Now I'm supposed to magically get better, hop right back into school, be cheery and social with everyone, and act like nothing happened. Well, something DID happen. And it changed everything.

Wednesday, September 5, 2007

I'm... bald... again...

Hair

So I think my hair might be falling out again... I noticed that it didn't seem to be growing much anymore, but now if I scratch my head or something some hair falls out. And if I try to pull a hair out, it comes out very easily. Just a little poke and I've pulled the hair out. Great...

Tuesday, September 4, 2007

Stupid drivers

Gah, so someone hit our car on Sunday. The new car! I'm pissed off. We were both backing out in a parking lot (Fritz was driving). We stopped, they didn't. They just kept backing up and hit us. We were stationary! Come on! Ugh. See what happens with the insurance and what not. We better not have to pay anything, was not our fault.

Funny stuff came out of the passenger's mouth. She claimed she was a cop and so knows the laws. Apparently because we stopped, we acknowledged that they had the right of way and so it was our fault they hit us and it was our responsibility to go into drive and avoid them... Uhh... Bullshit much? I guess we should have accelerated into them and then it would be their fault? Nice. Then she said that because they had backed out further than we had, that meant that they started backing out first and so had the right of way. Gee... yes, you were further out than us because... oh, I don't know... WE STOPPED AND YOU DIDN'T!?! I'm sorry, you hit a stationary car, I think that means it's your fault.

Friday, August 31, 2007

I'm sad. Don't know why.

Sunday, August 26, 2007

Woot!

I don't have to draw my eyebrows anymore! You can see them!! Ok, I did use some hair dye to make them more visible, but that's not really cheating.

Wednesday, August 22, 2007

Last Wednesday

Just have to think that. I feel absolutely horrible today. I nearly passed out earlier while sitting in my chair. Imagine if I'd been standing! Hoo boy, back to the sofa. Tomorrow evening I shall say goodbye to the pain. Good riddance. See how long it takes for my heart to settle down and for the dizziness to go away.

Monday, August 20, 2007

Apartment Pictures

I know! I need to take them! They are coming soon, I swear. I need everyone to wish me luck on the first day of class. I really hope I can make it. If I can get there Tuesday as well, I'll be thrilled, though I'm definitely not counting on it.

Anyways, my next hospital visit will be on Friday, I'll be taking Rachel to her last chemo. Then the next Friday, I'm getting another PET scan. Then the Tuesday after that, I'll be seeing Dr. Mininberg and getting a referral to see the radiation oncologist. Whew! See how this all goes. When I start radiation I'll have to go in every day, but only for a short time, nothing near as long as chemo. And the side effects shouldn't be nearly as bad. *crosses fingers*

Saturday, August 18, 2007

Fake Hair

I took a pic and stuck some hair on it for fun. Looks pretty funny. =)

AAAAAHHHHHHH!!!!!

Ok, first off, Rachel is out of the hospital! *cheers* No more fever, she should get her last chemo in a week. Great news!

Ok, second off, I'M DONE WITH CHEMO!!!!!!!!!!!!!!!!!! OMG the combination of "Holy shit I'm done with chemo!" and massive amounts of steroids is making me soooo hyper. I'm just bouncing all over the damn place! I hope I can get some sleep tonight... it's not looking good so far.

But I'm not quite off the hook, of course. My Hodgkin's Lymphoma Stage IIa non-favorable and bulky = radiation up ahead. Those pesky little tumors did take up 1/3 of my chest cavity after all! How the hell was I able to breathe?? Anyway, I'm in remission and hope to stay that way! I will be withholding my end of chemo party for Rachel. We shall party like crazed drugged up sleepyheads as none have before!

Sunday, August 12, 2007

=(

Rachel's been admitted to the hospital. Her fever won't go away. Really fucking lousy luck. She's supposed to be done with chemo! Not fair.

And there was sad news this week. Meera died. She was battling breast cancer for a second time. Alvin and Tricia now have her doggie. Here is a picture of the adorable couple, Meera and Dinky.

Thursday, August 9, 2007

Well, the day ended well. Fritz got off late from work again, but when he got back we went out for dinner since I was just up to it for some reason. I wore a cute new dress with a new hat. I've decided to go back to hats when I'm out where there are lots of people. My hair has reached the length that to some it might look like I did this intentionally. =P That and it's just a little... well... manly looking. Can't be helped. I think once it's at least an inch and half long there will be some hope. 2 inches will be lovely.

Bored

I'm bored. Not feeling great, can't do much. And bored. *sighs*

Tuesday, August 7, 2007

Ok

I'm getting there. 1 left now. Slow and chugging along.
Oh, and my hair is so long now! Maybe soon it'll be a full half a centimeter. Don't be jealous!

Friday, August 3, 2007

Oh joy

So I didn't get chemo today, it's been pushed back to Tuesday. Instead, I got to enjoy spending time in the emergency room. Got there at 4 this morning, didn't get back till almost 10. I've got some sort of stomach virus. Basically, my stomach hurts, a lot, I threw up last night, and now I have a fever. The pain started last night at around 11 and is still going strong. I guess yay for being sick from something other than cancer/chemo?
Oh, and I need a way to get to chemo on Tuesday now. More fun.

Friday, July 27, 2007

Looking up

Things seems to be going better than usual. My bad week was horrible, but I was able to move more. I was still in pain, still exhausted, heart racing like crazy, but somehow still not as bad as it had been before. Oh, and... my hair is coming in! What's going on?? This makes me feel quite optimistic about the fall semester starting. Now I'm looking forward to it instead of panicking so much.

And it looks like we're moving into a 2 bedroom apartment. *crosses fingers*

Thursday, July 26, 2007

Meep!

Friday, July 20, 2007

I want hairy nostrils!

Apparently my lack of nasal hair is causing mucus to run down my throat and into my lungs which is causing my damn cough. Yum!

Tuesday, July 17, 2007

Sunday, July 15, 2007

Pain

So it's getting harder and harder. I'm never fully awake, half the time I have to sit on the bed to catch my breath just to get from the sofa to the bathroom! Every now and then I have some energy, so I go and spend it all just to crash afterwards. Joy. To top it off, the pain never seems to fully go away anymore. The debilitating bone pain that I have for 2 and a half days may finally leave, but my muscles still hurt after. The only time I'm not in pain is when I'm curled up in the bathtub with the shower running down my back. I take long showers every day now, hopefully the water bill won't be too bad. I mean, Tylenol does take care of most of the muscle pain, but I can't live off Tylenol every day. Blah, I have mouth sores this week too. But hey, the Lexapro must be working cause somehow I'm managing to deal with all this. Go Lexapro!

Oh, and though I'm never fully awake, I'm also never fully asleep. Damn roids.

Saturday, July 7, 2007

Chemo Pics

Ok, made a little album of pictures I took during chemo today with my marvelous camera. You can see them here.

So a few pieces of news today. Apparently I am now anemic so I've started on the Procrit. I'll have to go in every week to get that shot. Hopefully this will help with the fatigue. I have a prescription for acne medication cause those crazy sore zits from the steroids have got to go. And, I have some happy pills. I don't ever ever want to have a meltdown like I had Sunday night/Monday morning again. I was actually screaming on Monday, but I was able to finally get kinda over it by walking around and forcing myself to concentrate on drinking a glass of water. But why don't we just go and try to avoid something like that happening again altogether? Sounds like a good plan to me.

One last thing. I started out with 4 tumors, the largest was 4 by 6 cm. The 3 smaller ones are gone and the giant one is now only 1 by 2 cm. I think that's what Mininberg said. I'm kinda foggy right now, ask me again in a week or so.

Wednesday, July 4, 2007

: /

Well, he rubbed some salt in the wound today. He's dumping the webpage for the guild that I spent so much time putting together and using a new one.

I don't understand why he hasn't bothered talking to me at all.

Tuesday, July 3, 2007

New side effect

So I had to cut my trip to New Orleans short because of a lovely new side effect from the chemo... massive anxiety and depression. I'm used to being anxious and depressed when there's a reason to be, but this time there was no real reason and it was a lot worse than normal. I know being away from home definitely was a reason for me to be anxious, but this was just ridiculous. Now that I've been home for a day I'm feeling a lot better. If I get freaked out here I know how to calm myself down, but anywhere else and I guess it just spirals out of control.

Friday, June 29, 2007

!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I'M IN REMISSION!! Or something. Maybe it's not remission till I'm done, but either way it's good news! Just talked to Dr. Mininberg this morning (thank you Rachel!!) and finally got the real results of my PET scan. So I am PET negative, there's some stuff left in there, but no active cancer cells!

I got "fake" results earlier this week from one of the nurses. All she said was "marked improvement"... that can mean pretty much anything, but she wouldn't say more than that. So Dr. Mininberg thought I knew the results, but I really didn't. I asked Rachel to get him to call me since she has chemo today and that's how I FINALLY got the results. Rachel also got her PET scan results today, was good news but not the very best. She will have to get another cycle of chemo like Dr. Mininberg thought she might, but of course we were all hoping for fewer. But it's still good news cause we are both going to be cured and there is an end in site (the good kind of end).

So now all these damned side effects seem a little more worth it. The pain has gotten really really bad, I have crater sized "zits" on my body (I swear they are an evolved form of zits) that do NOT feel good, bumps on the back of my head that ooze and scab up, pale sickly skin that peels easily, funky looking nails that now require nail polish to cover em, of course there are scars still, the nausea is getting worse, and the whole I'm completely useless and can't do anything without my heart racing and running out of breath really sucks. I spend probably half the time lying on the sofa waiting for my heart to stop thumping for fear it'll just hop right out. But hey, these things are temporary, and the cancer is dying instead of me!

Thursday, June 28, 2007

Catch up

So it's really been a while since I've posted much. Most important thing I should mention is what happened during my last chemo. There was a man sitting next to me, nice guy, so we started chatting. It's the chemo room thing to do. Only place us cancer folks can casually go up to someone and say "Hey, what do you have?" without weird awkwardness. Well, it seems his doctors aren't sure what he has, possibly mesothelioma, which is a very bad thing. It's usually caused by exposure to asbestos. It is also the 6th time he's had cancer! I can't imagine going through this so many times. But then I couldn't imagine it at all before. His first cancer was non-Hodgkin's lymphoma and was apparently the worst. But possibly it being the first time makes it the worst, I know I'll be pretty miserable if I am diagnosed with cancer again, but it will seem more routine instead of scary as shit like it has been.

Unfortunately, there was a bit of an interruption during the conversation. One of my chemo bags (the dacarbazine) spilled onto the side of my chair and on the table. Evidently this is a very very big deal. I was rushed out the chair and everyone was told to stay the hell away while people ran around cleaning it in a state of semi panic. My parents didn't even notice, I thought that was pretty funny. Apparently this stuff that they pump into my veins will cause serious burns if it gets on your skin. The nurse was so upset by it that after she couldn't remember what rate to set the pump for the dacarbazine, but that's ok, it's 750 ml/hr, I know this stuff now.

Well, after all the panic, I get back into my old chair that is free of the chemo spill and the guy is getting ready to leave (he had been chatting with my parents). On his way out he hands me a book. The book is called "No Such Thing As A Bad Day" by Hamilton Jordon with a forward by Jimmy Carter. Inside the cover is written "To Carina - With my best wishes for your good health! I know that you are a fighter and am confident that you will be cured! Your friend, Hamilton Jordon." Holy crap! This guy not only is a New York Times Bestseller, he was Jimmy Carter's chief-of-staff!! So, yeah, as soon as my little chemo brain will permit me to read, I will be reading his book.

Sunday, June 24, 2007

Zelza with antlers

Downloaded the Christmas pics from last year that I took with the digital camera I got then. As much as I loved the Canon PowerShot, it made me want a real camera even more. =P
Anyways, here are cute Zelza pics with antlers on.

Saturday, June 23, 2007

Quick Post


Ok, I actually have much to say but I'm getting really tired from an exciting day. I got my dream camera! A Nikon D40. This is the very first picture I took with it. Some tasty bananas. =) And this lovely, lovely camera works with my ancient Nikon lenses. So my camera and its 3 lenses all fit nicely in my new camera case (the case was only $20, can't quite say the same for the camera!).

Tuesday, June 19, 2007

I think I did too much yesterday, cause today I'm exhausted. The dog park was fun, but damn it's hot outside and walking up that nasty hill on the way back killed me. But Zelza had a blast. Blah, I'm going back to the sofa.

Sunday, June 17, 2007

Pissed

I'm up because I'm still fuming. Today I transferred my shaman to a new server. Getting away from him and the old guild. Not sure I'll play her, but she's got a new home now, so there's no going back. Just got a nice reminder of what a wonderful friend he turned out to be and it's got me all pissed off again. I promoted him to guild master when I was diagnosed with cancer, and what does he do but turn around and demote me soon after. It's just so crappy. I'm also pissed off because I really liked playing Earthdawn on the weekends, but don't have enough people anymore.

I said I'd get over the thing with him if he ever came around and apologized, but it's been too long now. He clearly does not give a damn about our friendship. A stupid video game is much more important to him and I don't want to be around anyone that chooses crap like that over his friends. So good riddance and screw him.

Friday, June 15, 2007

New office

Office pics. I got a nice rug from Ikea along with a cactus and some stick on flowers and stuff for the walls.



Very nice view. =)

Thursday, June 14, 2007

Hooray!

I no longer feel like crap. The bad week is over. Today Fritz has to stay real late at work. Maybe I'll see him tomorrow? But it's ok, cause I got to drive! Once I was able to stand up without being dizzy within 5 minutes, I set off to Atlantic Station where I got Fritz some much needed work shirts and me some much deserved strawberries. Yum. Oh, and some more nail polish. *admires her fingers*

So this silly screen thing on the Scion... The software was finally made available today so I could put my own pictures and stuff on it. Yes, it's still silly, but whatever, I now have an evil looking cartoon fish on my dashboard. I'll make it swim at some point, too lazy to do that yet. I wish it was color, seeing as most people have to spend $425 on it, shouldn't it be color? My phone cost $50, it has a color screen. =P

Awww, poor Sessie. She is really missing Fritz. She started mewing at the door around the time Fritz usually comes home, didn't stop for about an hour. Now she's curled up on the sofa looking dejected. I'm not THAT bad company, am I?

So uhh... I have barely any eyebrows and eyelashes left. You really can't see em anymore. I hadn't left the house since Monday this week and so didn't put on any makeup. Man, I looked weird. Not having eyebrows makes your forehead look huge. I feel much better now that I've drawn them back on and put on the mascara. Pretty soon I'll have to go to false eyelashes, though, there's not much left to put mascara on. =/

Tuesday, June 12, 2007

Tired

So it's Tuesday and I'm tired and not feeling great. Though I was able to get up before noon today, which is a first for my bad week. Maybe the ginseng is helping? Thursday will be the real test. If I can do anything more than moan on the sofa all day, I'll be thrilled.

Anyways, I'm thinking of getting a cheapo rug for the new office. The floor is just kinda funky, so I'll try to get one Friday then finish moving in on Saturday (along with cleaning the floor first if it isn't done by then). Of course, this depends on how I'm feeling, should be ok though.

Ok, wow, I am pretty tired. Wish my silly rogue was just level 40, would be more fun. But hey, it's still something mindless for my chemo brain to do. Think I'll make a salad and pass out.

Monday, June 11, 2007

My love affair

The car pics are in! Not the best lighting, but the best I could do seeing how crummy I feel. I was able to drive to campus today no problems and check out my new office (along with claiming a desk by the lovely window!).





That be a lot of luggage space. *grin*

Sunday, June 10, 2007

Ugh

So there's this funky funky chemo taste in my mouth that just won't go away. Normally whatever I eat or drink overpowers the taste, but this time around, the funk taste is winning out. This is nasty. I hope it goes away soon, cause it'd be nice to enjoy eating and drinking...

Oh, just going to reiterate that he is still a jackass. Unfortunately, it seems he's the only one that doesn't realize this. Fortunately, no one agrees with him.

On a plus side, I reinstalled WoW and am now loving my blood elf rogue. Fritz is playing his troll hunter from a ways back but might take my troll mage once transfers open on the server I rolled on. Alex may take one of our toons, prolly once he's back from Ohio. Man, his job sucks. This summer sucks. The 3 of us are not having a fun time right now.

But, I have a new car!!! I will take pictures at some point, but my nasty nasty sick days are coming up very soon, so it might have to wait until the weekend. So far only Fritz has seen me at my worst. The parents will be seeing my next sucky bad week, guess they'll let me know just how bad I look cause of course Fritz always says I look cute no matter what. =)

I may or may not try to drive to campus tomorrow. It seems I'm moving to a new office! The main entrance to the EAS building is being redone, so everyone in my current office has to move. We're supposed to finish moving by the end of the week, but, uhh... since Tues, Wed, and Thurs will definitely be spent NOT moving (I will be comatose on the sofa the majority of the time), I don't know that I'll manage. Fortunately, I've been given an extension. =P But what I may try is go either Monday or Friday just to get the new key and then move over the weekend, with some help because I know I won't be able to carry anything. I feel so pathetic. I went from weight lifting pretty seriously 3 to 4 times a week to being intimidated by a single flight of stairs. Man I feel weak.

Saturday, June 9, 2007

How many pills can a girl take?

It's crazy, I had to take 12 pills this morning! And most of them are not small. Here's the list of stuff I get to take:

1 baby asprin to prevent blood clots forming in my port
1 multivitamin cause it's good for me
2 Decadron, steroids that work with the anti nausia meds and keep me awake for 3 days after chemo
1 Emend which I take for 2 days for nausia
5 Metamucil tablets cause I need the fiber, normally I just take 3 cause chemo causes constipation, but apparently Emend causes bad constipation too, so I've upped the dose to 5 while I'm on the Emend
2 ginseng pills cause last week I read a study that they help with chemo fatigue, I'll find out if this is true for me over the next week

So yeah, that's a lot of stuff for a 23 year old to be taking. And except for the baby asprin and Decadron, they're all huge tablets.

Friday, June 8, 2007

Bleomycin

Bleomycin is the B in ABVD, which are the four chemotherapy drugs that I have been getting. This stuff can cause lung damage, so I got a pulmonary test before starting, and another one just 3 weeks ago. Well, the results are in, it seems that my gas uptake is not as good as the first test, so I have been taken off the Bleomycin. Now I just get AVD.

I guess this is good and bad. Bad because that's one less drug to help rid me of my 4 little friends in my chest. But it's also good because hopefully I will have avoided permanent lung damage. Well, just gotta take what I can get.

On a plus side, instead of gaining 3 pounds as usual, I lost a pound! And my blood pressure went down by 15 points. So that's nice, it's almost back to pre chemo levels. Oh, and the best thing, insurance is now covering Emend, it's lovely anti nausea medicine, which I sooo need.

Thursday, June 7, 2007

Awesomeness



And look, I'm a good girl. That be a lot of salad.

Chemo as insect repellent?

That's right, it seems chemotherapy is working as an insect repellent for me. Normally, I am considered quite the delicacy among the female mosquitoes. They will travel far to feast on me and ignore any other tasty morsels nearby, as none are as good as I. Going outside in the evening in the middle of summer guarantees that I will become a lumpy, swollen, itchy mess.

Well, no more! Now when a mosquito bites me, it bites once and leaves! My toxic blood is not so appealing to them it seems. I'd love to catch one in the act and see it gag after sipping a bit. =P

Sad Day

Before I say anything, I called up my dad at some stupid hour and chatted for an hour and forty minutes, so I am feeling fine now. Though, damn, I go through a lot of tissues these days.

The reason I called is because I lost what I thought was a very good friend today. Not sure how much detail I will go into because it requires I explain a stupid video game (World of Warcraft). Essentially, I made a guild in the game and ran it since roughly September of last year. I put lots of time and effort into this thing, including making the website (which is very pretty, the guild is called Descend). When I was diagnosed with cancer, I put my friend in charge of it since I knew I wouldn't have the time anymore. And this friend had been very nice, he even drove me to the hospital once when I couldn't find a way there (he got free lunch out of it). However, one week I was very very sick and didn't log on at all. I just couldn't move off the sofa. When I logged back on, I found that I couldn't chat in the officer channel anymore... he had demoted me! Mind you, this was the only channel I talked in. I sometimes logged on just to chat in there, since those were the people I knew best online. So of course I was pissed off, I actually cancelled my account, but the whole time I simply assumed he did not realize that it would upset me.

Well, it seems that was not quite the case. I decided to start playing again, hoping he would promote me when he saw that I was back. Today I went to a raid, and afterwards I jokingly asked what was going on in officer chat. They were apparently having fun joking about such and such, and I said I missed being in the channel. His response was, oh, you're not missing much. Well, then I decide to be a bit more straightforward for him (maybe he still doesn't get it?) and just flat out tell him that I was pissed off he booted me from the channel, seeing as I made the guild, ran it, made AND pay for the web page. His response? "We needed new blood"... WHAT THE HELL IS THAT? Oh, but he's nice, he'll pay for the web page now.

Now, this would not be such a big deal if A) I hadn't made the guild, B) I hadn't invited him to the guild and then promoted him, or C) He wasn't a real life friend. If I had been some random officer, not the one in charge who made the damn thing, or if he was just some online friend (hard to tell who the jerks are online), then this would not be a big deal, it's just a game. But, unfortunately, this was someone I had been friends with since my very first semester at Tech 5 years ago. And what he did was really really really mean. There's no way around it, that was just callous.

Edit: Just another point to make here. The main reason I went back to playing was so I could chat with this friend since he's always on. But since he pretty much only talks in the officer channel and he banned me from it, he essentially banned me from talking with him online.

Wednesday, June 6, 2007

Last night was bad. Doing better now, painting my finger nails.

...

Depressed again. Yay... Don't want to go on Friday. Really want this to be over with. And I keep poking the area where I found the tumor (well, one of 4) above my right collar bone. I guess it's still swollen from the surgery or something, I don't know.

Monday, June 4, 2007

Ugh

Stupid cancercare.org. I requested to be put on the waiting list for the Young Adults with Cancer support group. I wait about a month, finally get an email that says I'm in a group, but NOT the Young Adults one. Damn people put me in the wrong one! So... lovely... Since you can only sign up for one group at a time, I guess that means if I still want to join the right one I'll have to go back to the end of the wait list?
*insert profanities here*

Weee!

My last cancer symptom has gone away! I haven't put moisturizer on my skin in a few days and it's not peeling! The itchiness has been gone for about a month now, and today I will say that the peeling, dry skin is officially gone as well. It's possible the fatigue due to the cancer is gone, but it's been replaced with chemo fatigue. So though I'm ridiculously tired, I do feel more alert than I did pre chemo.
Mmm... smooth legs.

But that's not to say I feel great or anything. Nice dark circles under my eyes and pretty much can't move during my bad week. Too tired to even watch tv. And this morning I felt really sick, which is weird, this is my good week. I suppose it's possible that it could have been from something else.

Friday, June 1, 2007

Just some jokes

What's the difference between God and a Doctor?
God doesn't think he's a Doctor!

Doctor: The tests show that your cancer is advanced. You have six months to live.
Patient: But, doc, I can't pay off my medical bills in six months.
Doctor: In that case, you have six months more.

Three buddies were talking about death and dying. One asked, "When you're in your casket and friends and family are mourning you, what would you like to hear them say about you?"
The first guy says, "I would like to hear them say that I was a great doctor of my time and a great family man."
The second man says, "I would like to hear that I was a wonderful husband and school teacher who made a huge difference in our children of tomorrow."
The last guy says, "I would like to hear them say LOOK, HE'S MOVING!!!"

Mmm... Scion...

So I'm feeling a lot better today. At least my chemo schedule seems to be fairly consistent. I feel like crap Tuesday through Thursday, though it's beginning to sneak into Mondays now too. The aches are really annoying. They start in my cheeks, then spread through my jaw, my neck, then shoulders and throughout the rest of me. Early mornings are the absolute worst. Starting at around 4 I am pretty much writhing in pain in bed until noon. Makes for a very exhausted chemo girl, and hubby. The only bonus to all the pain and exhaustion is I'm not bored during the day anymore. Haha, very funny solution to that problem. I'm too tired and in too much pain to get depressed about my situation. For now, I'll take that. Not so bad.

Well, next week should be fun. Getting a new car! Gotta say thanks to the entire family for helping us out with it!! I'm really really looking forward to being able to go out during my good week. Let's see... what will I do... dog park, go to campus, grocery shopping, dog park, random other chores, did I mention dog park? I miss going to campus, but I really am way too weak to walk there anymore. I was hoping that wouldn't happen, but it has. Well, when I get back from DRIVING to campus I can have enough energy left over to clean! I like the apartment not looking like a giant furry mess. I cleaned it all up nicely for Frahn coming to visit last week, but since then it's gotten a bit messy again. I will clean it all up once I'm able to take the dog out without completely loosing my breath and needing to sit down after. No need to exhaust myself cleaning...

Thursday, May 31, 2007

Termie Termie

Termie is being so sweet to me today. This Thursday now sucks a little less. And no, I did not move off that sofa all day.


Fuck Thursdays

That is all.

Tuesday, May 29, 2007

Pictures

I'm tired and not feeling great, but here are some pics from Rachel's scarf party.


That blue hat left lots of fuzz on my head. =P

Thursday, May 24, 2007

Ramble

Well, since I'm up and not tired yet (I crashed earlier, silly me) I guess I'll do some rambling. I've developed a recent obsession with nail polish. Chemo is supposed to make your nails start to look funky, and mine have started getting weaker, so I figure I'd try to use clear nail polish kinda like nail glue to keep em together. So that was all good and dandy, but I decided, hey, if I'm going to go through the effort of putting this stuff on, I may as well get the colored stuff. I'm very proud of my fingers and toes, I think it looks very cute, and even Fritz agrees.

Strange thing with Fritz agreeing to stuff. It used to be that I'd always want to go out and do something, dog park, movies, whatever, all the time. I never wanted to just sit around at home. Fritz, being even more of a lump than I am, would eventually get tired and grumpy that I just couldn't sit still. Well, I'd been doing a lot of that not sitting still the last few days, and I was completely puzzled as to why Fritz was actually smiling that I was bugging the crap out him. I mean, he happily put his dishes away and gave the animals more water when I nagged him about it! It seems it's been a very long time since I've done that. Fritz says I've pretty much just been a slug since fall, and he's really happy that I'm getting back to my old self. And then I realized that I can't remember the last time I scratched myself that wasn't the result of a bug or something tickling my skin! So even though my bad weeks seem to be getting worse, I'm acting more and more normal on my good weeks. The chemo's working! I'll be getting a PET scan after my 8th round of chemo (getting round 6 on Friday), so I'm feeling a bit less nervous about it since I've realized my cancer symptoms have definitely been decreasing. Just a little side note here about the itching. It had gotten so bad at the beginning of this year, that I was suffering sitting in class trying not to scratch continuously. It was particularly bad when it happened to be my boobs that were itchy. Not really an area I can scratch in class. =P

Ooh, so, today I decided to spoil myself a bit. I got an iPod nano last year for free with my laptop. It was my third iPod, every single one of them was free for one reason or another. Just a week after I got that free one, the new nanos came out. You know, the ones with the aluminum casing that come in pretty colors. Blah, I was pissed. I really liked the aluminum casing on the iPod minis and was disappointed that my nano was mostly plastic. Well, today I decided to finally go ahead and buy my very first iPod. I got me a bright pink nano, it has twice the memory of my old nano and so can hold almost all my music. I am very content. Now I must find a home for the old nano (my father and father-in-law each have one of my old minis).

I still have to get Rachel's pot back to her! Somehow the timing just never works out. It's sitting all clean and shiny on my kitchen counter. I have to say, though, Rachel is pretty lucky. She has so many friends around her all the time. I know I have an awesome family, but since they're all far away most of the time, I feel pretty alone. Fritz, of course, is wonderful, but I still wish I had some friends. I had some people I hung out with on campus and somewhat outside of school, but since getting cancer it seems no one is really around anymore. Alex is a great friend, but he doesn't live nearby (and right now he's stuck in Ohio for 6 weeks) and Phil has disappeared into the black hole that is World of Warcraft. So other than that, I really don't have anyone to talk to. I think that's why I like this blog so much. The only people other than Fritz and Alex that I talk to are simply not close enough for me talk to about this crap. And I don't think they want to hear it anyway. Honestly, it's the hardest part of all this.

Wednesday, May 23, 2007

Top 10

Top 10 Reasons Being Bald Rocks

10. Topless tanning.
9. No hair in your soup. Or anywhere else, for that matter.
8. No haircuts, no shampoo, no styling - can you say low-maintenance?
7. No lice. Ewww.
6. When on the run from the police, you can hide out in the melon section of the grocery store.
5. Magic Marker skull tattoos.
4. On really hot nights, a cool satin pillowcase is better than sex. Like you're getting any.
3. Low maintenance = more time on your hands = higher blood counts (Yeah, you know what I mean!)
2. You can join the Bald Hall of Fame.
1. Aerodynamics, baby!

Top 10 Pick-up Lines for Cancer Patients

10. A night with me is better than chemo.
9. Is there Heparin running through my veins or is it hot in here?
8. I've got a scar shaped like a hickey--How about giving me a real one?
7. What's your diagnosis? I'm a Cancer.
6. It's not just my head that's bald, you know...
5. Is treatment lowering your bbt*? Because you sure are cool. (*basal body temperature)
4. Hey, baby, let's go back to my place and compare scars.
3. You must have lost all your hair, because you are smoooooth!
2. Let's go back to my hospital room: you play doctor, I'll play nurse.
1. Is that a chemo pump in your pocket or are you just happy to see me?

BONUS: Cancer personals: "Bald druggie seeks SO for hook-ups, incisions and full body scans. I'm used to getting "special" treatment, but my port is always easy access."

Top 10 Ways to Cut the Cancer Conversation Short

10. Yeah, well, I was getting sick of my haircut so I figured, why not?
9. You should see how many presents I got. It was totally worth it.
8. Chemo is a great way to lose weight.
7. People are a lot nicer when they think you might die.
6. It was a perfect opportunity to get caught up on all my soaps.
5. Yeah it sucked, but look at this bad-ass scar!
4. How else do you think I got into college? They can't turn down a cancer survivor.
3. Now I get to wear this trendy yellow bracelet.
2. I don't really remember it. I was too drunk most of the time.
1. It's okay, I didn't have anything scheduled for that year anyway.

Friday, May 18, 2007

Commercial

Ok, I'm not a Saturn fan, but I absolutely love this commercial. Every time I see it on tv I just feel uplifted. Obviously I'm talking about the first part. =)

Wednesday, May 16, 2007

Vital Needs

Top 2 things a chemo girl needs: tissues and moisturizer. Somehow chemo makes all the moisture from your skin come pouring out your eyes instead.

Insomnia Part II / Bipolar

Ok, one last comment, then I swear I'll try to get to sleep. Of all the things that cancer has done to me, I'd have to say so far the most impressive is how bipolar it's making me. I just bounce between depressed and really upbeat all the time. Oh man, an animal just farted... That smells terrible... Should I add easily distracted to that as well? Maybe not, it was a really bad smell, no way anyone could ignore that.

Anyways... having stupid mood swings is probably better than just being kinda dead the whole time. It's just so damn annoying.

Edit: Wow, I mood swinged myself in the middle of this post. Twice.

Good Things

Blah, my insomnia post sounds depressing. But there are some good things. I got a new swimsuit this weekend (one piece of course) that actually covers my port. It's very cute. Rachel brought food by. It was really really good and is all gone now. Rachel is Inton's roommate (who is my office mate and who's advisor is married to my advisor, hehe). She was diagnosed with non-Hodgkin's lymphoma about a month and half after I was diagnosed with Hodgkin's lymphoma. I think she might be done with her treatment before me. Anyways, we have the same oncologist (her doctors were sucking, so I recommended mine and evidently she agreed). On Friday I have a pulmonary test and Rachel is getting her second round of chemo, so I figured since I'd be there anyway I'd hang out with her while she sits around getting the drip and see how it is sitting in one of the regular chairs. You know, comfy as those chemo chairs look, the top pillow sticks out quite far and gives me neck cramps. Or maybe I just shouldn't be so fussy, I don't know.

Oh, and the best thing of all, I finally ordered the tank top I'd been thinking of getting. I should get it around June 5, since it has to be made. It will be black with light blue writing on it that says "too sexy for my hair". It shall be reserved for my downer days.

Insomnia

So I'm up. As usual. Chemo continues to cause me to stay up far too late, but lately it's harder because I just can't look forward to getting up in the morning. The nights themselves don't help much either... Once I get to sleep, I'm guaranteed to wake up at least 5 times throughout the night before morning for whatever reason. And each time I have the urge to get up. Then once it actually is time to get up (usually between 11 and noon), I just don't want to do anything. This only happens on my bad week. I'm way too tired to get to campus (even if I could teleport there, I don't think I would), so all I have to look forward to in the day is sitting around by myself. I watch tv, play video games, sit by the pool, read books,... Sounds thrilling, but it really isn't.

I mean, I guess I've always been a bit shy and somewhat reclusive. I've never liked being like that, but it's just how it's been. But now that I have this lovely thing called cancer I feel even more secluded than before. I don't party, don't drink, don't have anything interesting going on... is cancer interesting? Well, I find medical stuff cool, but then, that's just me. Maybe people just don't know how to act around me now and since I always seem pretty upbeat they assume I'm just dandy. I look forward to Fritz coming home on my bad days and hope that he isn't too tired from work. It must be rough on him too, though. We no longer walk home together from campus chatting about class, games, whatever else. Instead, Fritz comes home from work and has to cheer me up. Today we went to Houston's because I hadn't been able to eat all day and suddenly had the urge for a burger. But things don't taste so good anymore to me. It's all somewhat bland now, so I end up trying to eat more thinking the next bite will taste better. I'm thinking I should give up on that otherwise I'll just gain more weight. I know for a fact I'd feel a hell of a lot better if I wasn't 20 pounds heavier than I was last summer. Bastard lymphoma!

Wednesday, May 9, 2007

Book

So I've been trying to get this damn book for the last month and finally got it yesterday. It's called Bald in the Land of Big Hair and is about a woman living in Texas who is diagnosed with non-Hodgkin's Lymphoma (land of big hair cause it's Texas of course).

I'm debating walking to campus today or just reading the book since I'm kinda tired. Started it last night, so far it's shown me that my doctors are awesome and my insurance (though they like to scare me) is really pretty damn good. One of the author's friends had thyroid cancer after the birth of her first child, then after the birth of her second, she noticed a lump in her breast. Her doctors absolutely refused to do a biopsy, telling her she was just paranoid and that it was just a cyst. She battled with them for months before finally getting the biopsy done, though she had to pay for it herself because her insurance deemed it unnecessary and would not pay. She was then diagnosed with inflammatory breast cancer, which is pretty much lethal if not detected immediately. Then she had to fight again to get a bone marrow transplant because her insurance said she was too far gone and her probability of survival was not sufficient to justify the expense. So after months of fighting she was finally approved for the procedure, but by then the cancer had gone to her bones and she died soon after.

Fortunately, the book isn't that depressing throughout.

Anyways, I've been having weird eye problems. Yesterday my eyes were all red, burning, and tearing up. I called Dr. Mininberg and he prescribed some eye drops and told me to see someone about it today. But right now my eyes are fine, so I'm a little confused. He thought I had caught some sort of virus, but I'm thinking it might be something in the EAS building. After I left, my eyes got better on their own. I had to go back later because I'd left my ipod, and for the 5 minutes I was in the building I could feel my eyes beginning to dry up again. Maybe they're using some new cleaning solution or something, I have no idea. I'll have to see if it comes back when I go in again. I've never had such a problem before. Was not too much fun sitting at my desk with burning eyes and tears running down my cheeks. Ah well, add it to the acne on my forehead, the weird bumps on my head, the peeling skin on my legs, sores in my mouth (if I forget to chew my gum), nose bleeds, the exhaustion, anxiety, etc etc.

Ah, so I never did write about my insurance scare. I think today I'm finally feeling less miserable. It really left me a nasty shock. Basically, I called up just to check on things (as Jason suggested I do). The woman on the phone, however, didn't bother to actually check my account and gave me very VERY wrong information. So for about an hour I thought I only had $100,000 coverage. My bills have passed that mark already... Needless to say I was completely panicked. I wasn't able to reach Fritz at work. I talked to my parents who said they would take out a mortgage on their house (you know, the one that isn't rebuilt yet after Katrina...) and do whatever was needed to get me through my treatment. It just made me miserable. I can't help but feel like a burden. I mean, I don't really do anything other than be a mess right now. But today I am finally feeling better. And insurance is fine. I have $500,000 coverage which I shouldn't reach anyway. *cheers*

I think I'll go to campus tomorrow, and find a nice big pile of papers online that I'd like to read and print them all out on that lovely color laser printer. Something on Deep Chlorophyll Maxima cause I just find it cool. Then on my bad days next week I'll hang out by the pool and read them all (along with my lovely new book if I haven't finished it by then). My dad said he'd bring me some books too. Oh, and by "hang out by the pool", I mean sit in the shade with 50 spf sunscreen on and make sure that by the end of the summer I'm just as pale as I am now. I burned easily before chemo, but chemo makes it even worse.

I should really paint again. I have one I started ages ago of a giant coconut crab. They're called coconut crabs cause they can actually crack open coconuts with their giant claws. Man, I want one, they're so awesome. But I have a dog, 2 kitties, and an unknown number of hermit crabs, so I think I'm full on animals (that and coconut crabs are kinda endangered). Meh, details. =P

Monday, May 7, 2007

Sad

I could really use more hugs. Lately I spend my time just moping. Right now I'm hoping that I don't have to register for the summer. But have to make sure my insurance won't drop me if I do that.
I'm definitely getting more depressed than I would like. Hopefully it's temporary.

Monday, April 30, 2007

Hair

Kinda missing my hair today for the first time. That's the dress I was going to wear to Marta's wedding. Got a stupid good deal on it. =) I'll just have to find some other reason to wear it with lots of cute jewelry and makeup instead of hair!

Sunday, April 29, 2007

Friday, April 27, 2007

Tips

So I've decided to compile a list of tips that I've learned so far:
  • Dry, scaly, super sensitive skin - My mother in law brought me a big pile of different skin products, all of which were really great. My favorite ended up being Almond Glow. I realized it was my favorite when I noticed it ran out! The downside to it is that it made me smell like olive and peanut oil, and since I put it on my head I kept thinking I should be cooking myself or something. But I found scented ones at Whole Foods so now I smell like Lavender instead.
  • Mouth sores - The mouth wash they gave me didn't really work. It was actually just an anesthetic, and local anesthetics have never worked well on me (I always need more before they even begin to have an effect). But hey, better to avoid the mouth sores to begin with! So every day I make sure to at least once or twice chew sugarless gum for about an hour. It makes my mouth more moist (it's dry mouth that causes the sores). Haven't had any sores since.
  • Zits!!! - Goodness, that pissed me off. Have to be careful here since chemo makes your skin so sensitive, so no using anything harsh or with alcohol in it. I use Kiss my Face Astrigent (citrus essence) in the morning and at night. Almost no more acne left and my skin isn't peeling, so that's always a good thing.
  • More skin stuff - Wear 50 spf suncreen if you ever plan to step outside! No buts about it, just do it. And make sure to use moisturizer on your face.
  • Bathroom issues (yeah yeah, the crapper) - 3 Metamucil tablets a day (serving is 5, but 3 is enough for me). If you don't... well... most likely you won't be "going" for a while.
  • Hair - It hurts when it falls out. I razored it to about 1 inch long, then razored it even shorter, then shaved it off. Makes wearing hats and scarves much more comfy. Also, you don't look like you just shaved your head for hell of it if you just take it all off instead of leaving stubble behind. If you choose to hide your head all the time then just keeping what's left fairly short should do it. Otherwise an electric razor every day does the trick.
  • General stuff - Don't eat crap, try to work out, don't overdo it, take your vitamins.

And here's the biggest one:

Don't dwell on the situation. Talk about it, sure, but don't make it the only thing you talk about with friends. Don't think nonstop "Oh, I'm a cancer patient." See the situation as an irritation more than something traumatic and try to go on as you did before. Instead, I think "Hey, I'm Carina. I'm a graduate student, I love physical oceanography, I have an awesome husband, family, advisor, and friends. I've got a dog and 2 kitties. Oh, and I have cancer, but my bald head looks a hell of lot better than Spears'!" Only now you don't ever have to feel bad about taking a break or pampering yourself!

Thursday, April 26, 2007

Bleh!

Hmm... I think the chemo might be giving me acne... This is the first side effect that has actually really irritated me.
*runs to the store for anti-acne crap*

Hellos

So this is my first post. Of course, lots and lots has been happening. Tomorrow is chemo treatment number 4. So far, each treatment has been nicer than the last and I'm hoping that keeps up.

You can see my lovely bald head in the picture, there's still some hair stubble there. I've got a lot less now, but I need to shave my head every day so I don't have weird patches of hair on my head. This is very important because I've stopped wearing hats! I'll wear one when it's chilly or I just think it would look cute. But I'm not wearing them simply for the sake of covering my head anymore. Took me about 3 weeks to get to that point, but now that my shiny head doesn't look absolutely freakish to me anymore, I feel fine showing it off. Ooh, and a plus side, I no longer need to shave my legs. =)